The child born without 50%of her skull

On May 13, 2010, a baby girl; Okiki(Jesu)
was born to the Olawuyi’s in Ibadan, oyo
state, Nigeria, with a rare medical
condition subsequently diagnosed as
‘Congenital Cranial Deficiency’. In other
words, she was delivered with at least
50% of her skull unformed. For the
Olawuyi’s, that day marked the beginning
of a 3year struggle against stigmatization,
discrimination & near hopelessness.
A fter rejections from several hospitals
around the world, renowned
neurosurgeon at the Johns Hopkins
Medical International hospital, Baltimore,
Maryland; Dr. Ben Carson agreed to lead
a team of surgeons in performing a skull
reconstruction surgery on 3 year old
Okiki. After a review of her case history,
the tentative cost of Okiki’s surgery was
put at US$234,000 (Two hundred and
thirty four thousand United States
dollars). On receiving this estimate, GIPLC
reached out to her local network of
donors and phenomenally raised this
sum of money in approximately 72hours.
3 year old Okiki and her parents under
stewardship of Coordinator and Project
Director of GIPLC journeyed to the US on
May 4th 2013 to undergo her skull
reconstruction surgery which was
scheduled for the 22 nd of May 2013 at
the Johns Hopkins Medical International.
However, complications have occurred
following her over 14 hour’s initial
surgery, as a result of inconsistencies in
her medical history, in addition to the
fact that it was a maiden attempt in
paediatric neurosurgery. This has led to a
further accumulation of medical bills
totalling over US$500,000 (Five hundred
thousand United States dollars), a figure
that increases with each passing day
Okiki spends at Johns Hopkins.
Prior to the complications which have
arisen, what made a determination of the
full cost of Okiki’s surgery difficult is that
in modern times, it is an extremely rare
(perhaps singular) medical condition with
no precedence to draw indicators from.
This latter fact also means that it is
equally difficult to tell what other medical
complications may arise; just like the
fluids that were retained in her cranial
cavity has posed an unforeseen challenge
and may have led to a fatal infection.
As Okiki may not be released from
hospital until all outstanding bills have
been paid on one hand, and as we and
her parents are desirous of her condition
being fully remedied before she does
leave the hospital on the other, we would
like to appeal to the global public to
support our cause in ensuring that Okiki
gets a full chance at life.
Your donations go directly to Okiki’s
account with Johns Hopkins Medical
International.
We thank you for your generosity.
GIPLC
GIPLC
For more info call GIPLC 08089693240,
08163183797, 08085101664
NOTE; The over 7 billion people that
inhabit the earth, okiki is the first known
patient to undergo such a treatment and
still be alive, for her condition, on that
scale.
The Global Initiative for Peace Love &
Care (GIPLC) is a charitable organisation
based in Abuja, Nigeria that works with
orphans & vulnerable children aged 0-9
years. Over the last 7yrs, GIPLC in
partnership with a broad network of
supporters has raised the equivalent of
US$2M through local fundraising
initiatives toward increasing access to
education, nutrition, health, water,
hygiene/sanitation for over 4000 Nigerian
children.